The Back of My Mind was the original title I used when I started to write in my blog about the back symptoms I had been experiencing that eventually led to my being diagnosed with primary progressive multiple sclerosis three years ago today. Vague feelings of malaise were not new to me. Ever since I … Continue reading The Back of My Mind
As hard as I try to stay positive about my MS, I have to be honest and say that the last couple of weeks have been a challenge. The problem with something like MS is that symptoms that “normal” people suffer (like my current problem which feels like a pinched nerve), immediately get filed under … Continue reading Striking a Nerve
I bought myself a Fitbit recently. I was a bit late to the fitness tracking party but I finally succumbed because I wanted to set myself some personal goals for tracking my physical activity (I nearly said “daily movements” there but that would probably necessitate a totally different device!) Basically all I wanted it for … Continue reading The Creepy Side of Fitness Trackers
Weirdly enough there are a lot of things that I’m grateful for about having MS and today was one of those times. My MS symptoms tell me things today that I knew before but chose to ignore in the past. And now I can’t. I know I can’t party on until the wee hours. I … Continue reading Christchurch, NZ – Friday 15 March 2019
A Facebook post with a video of a deaf girl telling her story about how she became deaf and then singing so beautifully on one of the reality shows, got me thinking. The friend who posted it made the observation that running their first half marathon seemed like a very small achievement in comparison. I … Continue reading Still Able to
For sufferers of MS, this is no laughing matter! The Urology Dept advised me of my upcoming renal ultrasound saying: Drink a litre of water 90 minutes before your appointment until your bladder is very full and DO NOT empty your bladder prior to the procedure. Ha ha ha – you’ve got to be joking 🙄 (makes … Continue reading Can You Wait … ?
Two years today since that crazy time when I was sitting in Christchurch Public Hospital wondering what the hell the future had in store for me. The most frightening thing for me wasn’t learning that I had multiple sclerosis. It was that my MRI results would be reviewed and reported and that I would be … Continue reading Two Years On
