As hard as I try to stay positive about my MS, I have to be honest and say that the last couple of weeks have been a challenge. The problem with something like MS is that symptoms that “normal” people suffer (like my current problem which feels like a pinched nerve), immediately get filed under … Continue reading Striking a Nerve
I bought myself a Fitbit recently. I was a bit late to the fitness tracking party but I finally succumbed because I wanted to set myself some personal goals for tracking my physical activity (I nearly said “daily movements” there but that would probably necessitate a totally different device!) Basically all I wanted it for … Continue reading The Creepy Side of Fitness Trackers
Weirdly enough there are a lot of things that I’m grateful for about having MS and today was one of those times. My MS symptoms tell me things today that I knew before but chose to ignore in the past. And now I can’t. I know I can’t party on until the wee hours. I … Continue reading Christchurch, NZ – Friday 15 March 2019
A Facebook post with a video of a deaf girl telling her story about how she became deaf and then singing so beautifully on one of the reality shows, got me thinking. The friend who posted it made the observation that running their first half marathon seemed like a very small achievement in comparison. I … Continue reading Still Able to
For sufferers of MS, this is no laughing matter! The Urology Dept advised me of my upcoming renal ultrasound saying: Drink a litre of water 90 minutes before your appointment until your bladder is very full and DO NOT empty your bladder prior to the procedure. Ha ha ha – you’ve got to be joking 🙄 (makes … Continue reading Can You Wait … ?
Two years today since that crazy time when I was sitting in Christchurch Public Hospital wondering what the hell the future had in store for me. The most frightening thing for me wasn’t learning that I had multiple sclerosis. It was that my MRI results would be reviewed and reported and that I would be … Continue reading Two Years On
How true is this? Something I need to remember on days when I get frustrated and annoyed because I don’t always have the energy to do certain things, interact with people and respond to situations in the way that I once did. I can still climb that hypothetical mountain but I need to accept that … Continue reading Note to Self
My sister and her partner arrived from the UK at the end of February and we hired a campervan and spent two weeks travelling around the lower South Island. We visited places we hadn’t seen since we were kids and reminisced about our camping holidays with Mum all those years ago as we explored Lake … Continue reading A Relapse of A Different Kind
It’s been over a year since I was taken to hospital in an ambulance and subsequently diagnosed with primary progress multiple sclerosis. Going back into ‘the real world’ had been a very daunting experience after my discharge a month later and for many weeks I was in a wheelchair before progressing to a walking frame … Continue reading One Year On
I was becoming more independent by the day and my daughter began to make plans to leave home and move in with her boyfriend. Apart from the undeniable fact that I would miss her company, I was happy for her and quite looking forward to having my own space. I could tell however that she … Continue reading The Harry Potter Lady
Claire Jewitt 