My Pharmac funding was approved and I’m now in my fifth week of taking a Biogen manufactured drug called Tecfidera. I started on one 120mg tablet per day and have gradually increased it to the point where I’m now taking two 240mg tablets daily which is the maximum. The active ingredient in Tecfidera is dimethyl … Continue reading Drugs, Drawbacks & Discoveries
“You wouldn’t read about it,” said Squeak, shaking his head and making a tut-tutting noise. “We did read about it,” said Captain Obvious, Ron. “But what are we going to do about it?” I just wanted to smooth this all over as quickly as possible. Serafina jumped on top of the rusted wheelbarrow which she … Continue reading A Head of Steam
At Godley House Grounds, Diamond Harbour – 24 January 2021 Previous: << Some Girls Sing the Stones Continue reading Live at the Point
I haven’t written much about my MS lately, primarily because up until about July this year it just bubbled along in the background. Always there, sometimes painful and a bit debilitating but on the whole, not causing me too much grief. I was diagnosed with MS when I was 56 which is unusual because the … Continue reading MS – Eying up the Future
On the first day of lockdownCovid meant for meA shortage of PPE. On the second day of lockdownCovid meant for meFree Covid tests,And a shortage of PPE. On the third day of lockdownCovid meant for meQR Codes,Free Covid tests,And a shortage of PPE. On the fourth day of lockdownCovid meant for meWage subsidies,QR Codes, Free … Continue reading The Twelve Days of Covid
Ron comes out of the kitchen and I immediately know that there’s something wrong. He’s not licking his lips which I take as a clear sign that he hasn’t eaten the remains of the steak and kidney Jimbos I’d deliberately left in my bowl. This out-of-character behaviour is not lost on Squeak who attempts to … Continue reading The Gingernuts
At Wunderbar, Lyttelton – 10 October 2020 Next: << Live at the Point Previous: << Diamond Harbour Continue reading Some Girls Sing the Stones
It was about the time of my sixtieth birthday that my MS started to get twitchy. It was as though it were awakening after a long sleep. Neurologist visits and scans would doubtless need to be done to find out what’s at the bottom of this but I’ll write about that in future posts. For … Continue reading Working Around MS
In the midst of this pandemic, hearing constant Covid news Irritating buzzwords are creeping into use Go hard, go early, crush the curve, halt the virus spread Social distance, stay indoors, work from home instead Close the bars and restaurants, lock the borders down Save your outings only for essential trips to town Break the … Continue reading Buzzwords
The summons comes at 3:30pm on Friday 24th April 2020 from Serafina Pekkala. Named rather aptly after the queen of a clan of witches, Serafina considers herself the kingpin in our group of neighbourhood cats and today she has called an emergency meeting to discuss our Pandemic Plan. Neither Ron, Squeak nor I have the … Continue reading The Isolation Flat
